This paper is in the following e-collection/theme issue:

Innovations in Cancer Diagnostic and Decision Support (109) Policy and Policy Proposals (150) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (698) Health Information Exchange (146)

Published on in Vol 9 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/39631, first published .
Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Authors of this article:

Minakshi Raj1 Author Orcid Image ;   Kerry Ryan2 Author Orcid Image ;   Philip Sahr Amara3 Author Orcid Image ;   Paige Nong4 Author Orcid Image ;   Karen Calhoun5 Author Orcid Image ;   M Grace Trinidad6 Author Orcid Image ;   Daniel Thiel7 Author Orcid Image ;   Kayte Spector-Bagdady2 Author Orcid Image ;   Raymond De Vries2 Author Orcid Image ;   Sharon Kardia8 Author Orcid Image ;   Jodyn Platt3 Author Orcid Image
Article Authors Cited by (8) Tweetations (2) Metrics

Journals

  1. van Kessel R, Ranganathan S, Anderson M, McMillan B, Mossialos E. Exploring potential drivers of patient engagement with their health data through digital platforms: A scoping review. International Journal of Medical Informatics 2024;189:105513 View
  2. Pollard S, Ehman M, Hermansen A, Weymann D, Krebs E, Ho C, Lim H, Jones S, Bombard Y, Hanna T, Hessels C, Longstaff H, Cook-Deegan R, Bubela T, Regier D. “I Just Assumed This Was Already Being Done”: Canadian Patient Preferences for Enhanced Data Sharing for Precision Oncology. JCO Precision Oncology 2024;(8) View
  3. Johnston E, Bourdaniotis X, Ayre S, Zajdlewicz L, Beesley V, Goodwin B. Data sharing in cancer research: A qualitative study exploring community members' preferences. Cancer Medicine 2024;13(15) View
  4. Spector‐Bagdady K, Ryan K, Chen L, Giacobone C, Jagsi R, Hamasha R, Hendy K, Thomas J, Milne J, Vinson A, Platt J. Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens. Learning Health Systems 2025;9(1) View
  5. Thoma B, Spadafore M, Sebok-Syer S, George B, Chan T, Krumm A. Considering the Secondary Use of Clinical and Educational Data to Facilitate the Development of Artificial Intelligence Models. Academic Medicine 2024;99(4S):S77 View
  6. Suresh U, Ancker J, Salmi L, Diamond L, Rosenbloom T, Steitz B. Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology. BMJ Oncology 2025;4(1):e000432 View
  7. Draucker C, Carrión A, Ott M, Knopf A. Evaluating the Quality of a Public Deliberation Through the Use of Enhanced Qualitative Analysis. Qualitative Health Research 2025 View
  8. Kyrou D, Bonotis P, Kakalou C, Vasilopoulou M, Scarfò L, Meyerheim M, Sander A, Arpáš T, Kazantzaki E, Maramis C, Karamanidou C. Perceptions and Needs of Stakeholders Regarding MyPal Project’s Electronic Patient-Reported Outcome App: Cross-Sectional Qualitative Focus Group Study. JMIR Cancer 2025;11:e57388 View