Published on in Vol 9 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/39631, first published .
Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Journals

  1. van Kessel R, Ranganathan S, Anderson M, McMillan B, Mossialos E. Exploring potential drivers of patient engagement with their health data through digital platforms: A scoping review. International Journal of Medical Informatics 2024;189:105513 View
  2. Pollard S, Ehman M, Hermansen A, Weymann D, Krebs E, Ho C, Lim H, Jones S, Bombard Y, Hanna T, Hessels C, Longstaff H, Cook-Deegan R, Bubela T, Regier D. “I Just Assumed This Was Already Being Done”: Canadian Patient Preferences for Enhanced Data Sharing for Precision Oncology. JCO Precision Oncology 2024;(8) View
  3. Johnston E, Bourdaniotis X, Ayre S, Zajdlewicz L, Beesley V, Goodwin B. Data sharing in cancer research: A qualitative study exploring community members' preferences. Cancer Medicine 2024;13(15) View
  4. Spector‐Bagdady K, Ryan K, Chen L, Giacobone C, Jagsi R, Hamasha R, Hendy K, Thomas J, Milne J, Vinson A, Platt J. Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens. Learning Health Systems 2025;9(1) View
  5. Thoma B, Spadafore M, Sebok-Syer S, George B, Chan T, Krumm A. Considering the Secondary Use of Clinical and Educational Data to Facilitate the Development of Artificial Intelligence Models. Academic Medicine 2024;99(4S):S77 View
  6. Suresh U, Ancker J, Salmi L, Diamond L, Rosenbloom T, Steitz B. Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology. BMJ Oncology 2025;4(1):e000432 View
  7. Draucker C, Carrión A, Ott M, Knopf A. Evaluating the Quality of a Public Deliberation Through the Use of Enhanced Qualitative Analysis. Qualitative Health Research 2025 View
  8. Kyrou D, Bonotis P, Kakalou C, Scarfò L, Meyerheim M, Sander A, Arpas T, Kazantzaki E, Maramis C, Karamanidou C. Perceptions and Needs of Stakeholders on MyPal Project’s ePRO Applications: Findings from Focus Groups in 4 Countries (Preprint). JMIR Cancer 2024 View