Published on in Vol 9 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/39631, first published .
Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

Minakshi Raj   1 , MPH, PhD ;   Kerry Ryan   2 , MA ;   Philip Sahr Amara   3 , MPH ;   Paige Nong   4 , BA ;   Karen Calhoun   5 , MA ;   M Grace Trinidad   6 , PhD ;   Daniel Thiel   7 , PhD ;   Kayte Spector-Bagdady   2 , MBe, JD ;   Raymond De Vries   2 , PhD ;   Sharon Kardia   8 , PhD ;   Jodyn Platt   3 , PhD

1 Department of Kinesiology and Community Health, University of Illinois Urbana Champaign, Champaign, IL, United States

2 Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI, United States

3 Department of Learning Health Sciences, University of Michigan, Ann Arbor, MI, United States

4 Department of Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, MI, United States

5 Michigan Institute for Clinical & Health Research, Ann Arbor, MI, United States

6 National Hemophilia Program Coordinating Center, Ann Arbor, MI, United States

7 Lyman Briggs College, Michigan State University, East Lansing, MI, United States

8 School of Public Health, University of Michigan, Ann Arbor, MI, United States

Corresponding Author:

  • Minakshi Raj, MPH, PhD
  • Department of Kinesiology and Community Health
  • University of Illinois Urbana Champaign
  • 2007 Huff Hall
  • 1206 South Fourth Street
  • Champaign, IL, 61820
  • United States
  • Phone: 1 2173006336
  • Email: mraj@illinois.edu