This paper is in the following e-collection/theme issue:

Supporting Partners and Informal Caregivers of Cancer Patients (54) Emotional, Social, Psychological Support for Cancer (250) Cancer Survivorship (334) Caregiving and Parenting for Chronic Pediatric Diseases (112)

Published on in Vol 8, No 3 (2022): Jul-Sep

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/38722, first published .
Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention

Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention

Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention

Authors of this article:

Carma L Bylund1 Author Orcid Image ;   Easton N Wollney1 Author Orcid Image ;   Gemme Campbell-Salome2 Author Orcid Image ;   Allison J Applebaum3 Author Orcid Image ;   Samantha R Paige4 Author Orcid Image ;   Kennan DeGruccio5 Author Orcid Image ;   Elisa Weiss6 Author Orcid Image ;   Maria Sae-Hau6 Author Orcid Image ;   Jason Arnold7 Author Orcid Image ;   Domenic Durante7 Author Orcid Image ;   Tithi B Amin1 Author Orcid Image ;   Chelsea N Hampton8 Author Orcid Image ;   Carla L Fisher8 Author Orcid Image
Article Authors Cited by (18) Tweetations (8) Metrics

Journals

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  2. Wollney E, Bylund C, Kastrinos A, Campbell-Salome G, Sae-Hau M, Weiss E, Fisher C. Understanding parents uncertainty sources and management strategies while caring for a child diagnosed with a hematologic cancer. PEC Innovation 2023;3:100198 View
  3. Nur A, Chua J, Shorey S. Effectiveness of community‐based family‐focused interventions on family functioning among families of children with chronic health conditions: A systematic review and meta‐analysis. Family Process 2023;62(4):1408 View
  4. Parker N, Wollney E, Bylund C, Amin T, Mullis M, Bagautdinova D, Sae-Hau M, Weiss E, Thomas L, Fisher C. Living with a blood cancer in later life: The complex challenges and related support needs of adults aged 75 and older. Palliative and Supportive Care 2024;22(6):1728 View
  5. Wright K, Bylund C, Bagautdinova D, Vasquez T, Sae-Hau M, S. Weiss E, Rajotte M, Fisher C. Caring for an Individual with Chronic Lymphocytic Leukemia (CLL): Understanding Family Caregivers’ Perceptions of Social Support, Caregiver Burden, and Unmet Support Needs. Journal of Cancer Education 2024;39(2):180 View
  6. Wollney E, Bylund C, Bedenfield N, Parker N, Rosselli M, Curiel Cid R, Kitaigorodsky M, Armstrong M. Persons living with dementia and caregivers' communication preferences for receiving a dementia diagnosis. PEC Innovation 2024;4:100253 View
  7. Mullis M, Wollney E, Bylund C, Campbell-Salome G, Wright K, Sae-Hau M, Weiss E, Rajotte M, Fisher C. “A Caregiver’s Marriage”: The Impact of Blood Cancer on the Spousal Connection. Cancer Care Research Online 2024;4(2):e055 View
  8. Wang Y, Seplaki C, Norton S, Williams A, Kadambi S, Loh K. Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions. Current Oncology Reports 2024;26(7):773 View
  9. Hertz J, Sakita F, Rahim F, Mmbaga B, Shayo F, Kaboigora V, Mtui J, Bloomfield G, Bosworth H, Bettger J, Thielman N. Multicomponent Intervention to Improve Acute Myocardial Infarction Care in Tanzania: Protocol for a Pilot Implementation Trial. JMIR Research Protocols 2024;13:e59917 View
  10. Wright K, Bylund C, Bagautdinova D, Hampton C, Campbell-Salome G, Weiss E, Sae-Hau M, Fisher C. Caring for a Parent With a Blood Cancer: Sibling Communication Challenges and Psychosocial Outcomes. Families in Society: The Journal of Contemporary Social Services 2025;106(4):1180 View
  11. Wollney E, Bylund C, Vasquez T, Campbell-Salome G, Wright K, Sae-Hau M, Weiss E, Fisher C. Understanding the critical role of blood cancer spousal caregivers in clinical communication before, during, and after medical visits. Journal of Psychosocial Oncology Research and Practice 2024;6(3) View
  12. Fenton A, Blashill B, Revette A, Mann A, Reblin M, Enzinger A, Ornstein K, Jain S, Manz C, Tulsky J, Wright A. “You Want to Shield Your Kids”: Patients’ and Their Adult-Children's Serious Illness Conversations. Journal of Pain and Symptom Management 2025;69(5):435 View
  13. Mullis M, Bylund C, Bagautdinova D, Bryan E, Sae-Hau M, Weiss E, Lagmay J, Fisher C. “Somewhat of an Adult”: Understanding the “Dance” of Competing Tensions Parents Manage While Caring for an Adolescent or Young Adult (AYA) Diagnosed with Hematologic Malignancy. Cancers 2025;17(8):1299 View
  14. Gebert R, Fisher C, Bacharz K, Granemann L, Loschiavo M, Applebaum A, Kastrinos A. Parental cancer caregiving in emerging and young adulthood: the impact of sibling dynamics on the caregiving experience. Journal of Health Psychology 2025 View
  15. Fakolade A, Cardwell K, Chow E, Ross-White A, Pilutti L. Exploring usability characteristics in computer-based digital health technologies for family caregivers of people with chronic progressive conditions: A scoping review. DIGITAL HEALTH 2025;11 View
  16. Hertz J, Sakita F, Haukila K, Shayo P, Shayo F, Willy J, Lameck G, Kisanga E, Bosworth H, Bettger J, Rahim F, Clemence M. Acceptability and feasibility of a multicomponent intervention to improve acute myocardial infarction care in Northern Tanzania: The MIMIC pilot trial. PLOS One 2025;20(9):e0333271 View
  17. Wollney E, Bylund C, Wright K, Campbell-Salome G, Sae-Hau M, Weiss E, Bryan E, Nesbit T, Fisher C. The caregiver clinical communication process model: advancing the model to support spousal cancer caregivers. Supportive Care in Cancer 2025;33(12) View
  18. Kent E, Deal A, Sperry S, Nakamura Z, Gellin M, Kovacs J, Martin C, Reblin M. Feasibility and Acceptability of an 8‐Week Supportive Care Intervention for Cancer Caregivers Adapted for Rural Settings. Psycho-Oncology 2025;34(12) View