%0 Journal Article
%@ 2369-1999
%I JMIR Publications
%V 8
%N 3
%P e38722
%T Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention
%A Bylund,Carma L
%A Wollney,Easton N
%A Campbell-Salome,Gemme
%A Applebaum,Allison J
%A Paige,Samantha R
%A DeGruccio,Kennan
%A Weiss,Elisa
%A Sae-Hau,Maria
%A Arnold,Jason
%A Durante,Domenic
%A Amin,Tithi B
%A Hampton,Chelsea N
%A Fisher,Carla L
%+ Department of Health Outcomes & Biomedical Informatics, University of Florida, 2004 Mowry Rd, Gainesville, FL, 32610, United States, 1 352 627 9467, carma.bylund@ufl.edu
%K caregiver
%K clinician-patient communication
%K healthy communication practice
%K eHealth literacy
%K family communication
%K feasibility
%K acceptability
%K oncology
%K blood cancer
%K cancer patent
%K web-based information seeking
%K health information
%K clinical communication
%K smartphone
%K mobile phone
%D 2022
%7 5.7.2022
%9 Original Paper
%J JMIR Cancer
%G English
%X Background: Adult child caregivers of parents with cancer may face challenges when communicating with the patient and other family members, communicating during clinical interactions, and navigating web-based information seeking. Objective: We developed and pilot-tested the Healthy Communication Practice program for adult child caregivers of parents with a blood cancer, which aims to help participants learn and implement communication skills central to caregiving. We assessed the feasibility and acceptability of the training. Methods: Eligible participants completed a preprogram survey. We assessed the feasibility of participants completing the intervention in the allotted time. Participants had 2 weeks to complete the 2-part, 90-minute online program and completed a postprogram survey that included program evaluation items and the Acceptability of Intervention Measure (AIM) using a 1-5 rating scale (5=strongly agree). Results: Of 50 caregivers who initially expressed interest, 34 consented, and 30 completed the program and both surveys (88% completion rate). Caregivers had a mean age of 45.07 (SD 11.96) years and provided care for parents who had a mean age of 73.31 (SD 9.38) years. Caregivers were primarily daughters (n=22, 73%). Overall, scores on the AIM scale were high (mean 4.48, SD 0.67). Specifically, caregivers felt the content met their communication needs (mean 4.58, SD 0.62) and their own needs as a caregiver of a parent with a blood cancer (mean 4.39, SD 0.72). Conclusions: We demonstrated the feasibility and acceptability of the Healthy Communication Practice program, which aims to enhance family and clinical communication skills among caregivers of a parent with a blood cancer. Future studies will examine the efficacy of the program and its impact on both caregiver and patient communication and health outcomes. 
%M 35788019
%R 10.2196/38722
%U https://cancer.jmir.org/2022/3/e38722
%U https://doi.org/10.2196/38722
%U http://www.ncbi.nlm.nih.gov/pubmed/35788019