Participatory Cancer Care

Examining the Effectiveness of Electronic Patient-Reported Outcomes in People With Cancer: Systematic Review and Meta-Analysis

Melissa Betty Perry, Sally Taylor, Binish Khatoon, Amy Vercell, Corinne Faivre-Finn, Galina Velikova, Antonia Marsden, Calvin Heal, Janelle Yorke

J Med Internet Res 2024 (Jul 31); 26:e49089

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Pediatric Cancer Communication on Twitter: Natural Language Processing and Qualitative Content Analysis

Nancy Lau, Xin Zhao, Alison O'Daffer, Hannah Weissman, Krysta Barton

JMIR Cancer 2024 (May 07); 10:e52061

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Validating the Effectiveness of the Patient-Centered Cancer Care Framework by Assessing the Impact of Work System Factors on Patient-Centered Care and Quality of Care: Interview Study With Newly Diagnosed Cancer Patients

Safa Elkefi, Onur Asan

JMIR Hum Factors 2024 (Apr 24); 11:e53053

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Supportive Care Needs in Chinese, Vietnamese, and Korean Americans With Metastatic Cancer: Mixed Methods Protocol for the DAWN Study

Jacqueline H J Kim, Marjorie Kagawa Singer, Lisa Bang, Amy Ko, Becky Nguyen, Sandy Chen Stokes, Qian Lu, Annette L Stanton

JMIR Res Protoc 2024 (Apr 22); 13:e50032

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Development and Implementation of an eHealth Oncohematonootric Program: Descriptive, Observational, Prospective Cohort Pilot Study

Beatriz Sánchez-Quiñones, Cristina Antón-Maldonado, Nataly Ibarra Vega, Isabel Martorell Mariné, Amparo Santamaria

JMIR Form Res 2024 (Apr 08); 8:e49574

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The Acceptance and Use of Digital Technologies for Self-Reporting Medication Safety Events After Care Transitions to Home in Patients With Cancer: Survey Study

Yun Jiang, Misun Hwang, Youmin Cho, Christopher R Friese, Sarah T Hawley, Milisa Manojlovich, John C Krauss, Yang Gong

J Med Internet Res 2024 (Mar 08); 26:e47685

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Need for Culturally Competent and Responsive Cancer Education for African Immigrant Families and Youth Living in the United States

Olufunmilola Abraham, Adeola Agoke, Kazeem Sanuth, Abimbola Fapohunda, Motolani Ogunsanya, Megan Piper, Amy Trentham-Dietz

JMIR Cancer 2024 (Mar 06); 10:e53956

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Involving Patients and Clinicians in the Design of Wireframes for Cancer Medicines Electronic Patient Reported Outcome Measures in Clinical Care: Mixed Methods Study

Emma Dunlop, Aimee Ferguson, Tanja Mueller, Kelly Baillie, Jennifer Laskey, Julie Clarke, Amanj Kurdi, Ann Wales, Thomas Connolly, Marion Bennie

JMIR Form Res 2023 (Dec 21); 7:e48296

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Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving

Reed W R Bratches, Jaclyn A Wall, Frank Puga, Giovanna Pilonieta, Rita Jablonski, Marie Bakitas, David S Geldmacher, J Nicholas Odom

JMIR Aging 2023 (Dec 20); 6:e44166

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Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study

Line Bentsen, Signe Hanghøj, Maiken Hjerming, Mette Buur Bergmann, Marianne Thycosen, Anette Borup, Camilla Larsen, Helle Pappot

JMIR Cancer 2023 (Dec 04); 9:e49735

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A Web-Based Mindfulness-Based Cognitive Therapy for Couples Dealing With Chronic Cancer-Related Fatigue: Protocol for a Single-Arm Pilot Trial

Fabiola Müller, Sophie van Dongen, Rosalie van Woezik, Marijke Tibosch, Marrit A Tuinman, Melanie P J Schellekens, Jean-Philippe Laurenceau, Marije van der Lee, Mariët Hagedoorn

JMIR Res Protoc 2023 (Nov 06); 12:e48329

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Telehealth Availability for Cancer Care During the COVID-19 Pandemic: Cross-Sectional Study

Victoria A Marks, Walter R Hsiang, James Nie, Waez Umer, Afash Haleem, Bayan Galal, Irene Pak, Dana Kim, Michelle C Salazar, Haddon Pantel, Elizabeth R Berger, Daniel J Boffa, Jaime A Cavallo, Michael S Leapman

JMIR Cancer 2023 (Nov 02); 9:e45518

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Preference Elicitation and Treatment Decision-Making Among Men Diagnosed With Prostate Cancer: Randomized Controlled Trial Results of Healium

Michael A Diefenbach, Allison Marziliano, Erin K Tagai, Halie Pfister, Emmanuel Lapitan, Simon J Hall, Manish Vira, Said Ibrahim, Kelli Aibel, Alexander Kutikov, Eric M Horwitz, Curtis Miyamoto, Adam C Reese, Suzanne M Miller

J Med Internet Res 2023 (Oct 20); 25:e46552

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Enhancing Transsectoral Interdisciplinary Patient-Centered Care for Patients With Rare Cancers: Protocol for a Mixed Methods Process Evaluation

Jana Hinneburg, Sandro Zacher, Birte Berger-Höger, Karin Berger-Thürmel, Vanessa Kratzer, Anke Steckelberg, Julia Lühnen, TARGET Group

JMIR Res Protoc 2023 (Oct 12); 12:e49731

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Usability of Electronic Patient-Reported Outcome Measures for Older Patients With Cancer: Secondary Analysis of Data from an Observational Single Center Study

David Riedl, Jens Lehmann, Maria Rothmund, Daniel Dejaco, Vincent Grote, Michael J Fischer, Gerhard Rumpold, Bernhard Holzner, Thomas Licht

J Med Internet Res 2023 (Sep 21); 25:e49476

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Intentions of Patients With Cancer and Their Relatives to Use a Live Chat on Familial Cancer Risk: Results From a Cross-Sectional Web-Based Survey

Paula Memenga, Eva Baumann, Hanna Luetke Lanfer, Doreen Reifegerste, Julia Geulen, Winja Weber, Andrea Hahne, Anne Müller, Susanne Weg-Remers

J Med Internet Res 2023 (Aug 28); 25:e45198

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Perceived Patient Workload and Its Impact on Outcomes During New Cancer Patient Visits: Analysis of a Convenience Sample

Safa Elkefi, Onur Asan

JMIR Hum Factors 2023 (Aug 18); 10:e49490

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Using Health-Related Social Media to Understand the Experiences of Adults With Lung Cancer in the Era of Immuno-Oncology and Targeted Therapies: Observational Study

Alison Booth, Stephanie Manson, Sonia Halhol, Evie Merinopoulou, Mireia Raluy-Callado, Asha Hareendran, Stefanie Knoll

JMIR Cancer 2023 (Jul 12); 9:e45707

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Perceived Barriers and Facilitators in Using Patient-Reported Outcome Systems for Cancer Care: Systematic Mapping Study

Anna-Mari Laitio, Guido Giunti, Raija Halonen

JMIR Cancer 2023 (Jun 28); 9:e40875

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Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design

Maclean Thiessen, Shelly Raffin Bouchal, Patricia A Tang, Shane Sinclair

JMIR Cancer 2023 (May 17); 9:e41740

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