Participatory Cancer Care

Personal Health Record Software for Neuroendocrine Tumors: Patient-Centered Design Approach

Juan Pablo Hourcade, Michael O'Rorke, Elizabeth Chrischilles, Nicholas J Rudzianski, Brian Gryzlak, Kerry Peterman, Chris Ortman, Sam Wolstencroft, Margaret Bean, Elyse Gellerman, Josh A Mailman, Maryann Wahmann

JMIR Hum Factors 2025 (Jun 03); 12:e68788

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ENABLE—App-Based Digital Capture and Intervention of Patient-Reported Quality of Life, Adverse Events, and Treatment Satisfaction in Breast Cancer: Protocol for a Randomized Controlled Trial

Thomas M Deutsch, Léa L Volmer, Manuel Feisst, Laura Bodenbeck, Kathrin Hassdenteufel, Lara Tretschock, Christiane Breit, Stefan Stefanovic, Armin Bauer, Carolin Anders, Lina Weinert, Tobias Engler, Andreas D Hartkopf, Nico Pfeifer, Pascal Escher, Marc Mausch, Oliver Heinze, Marc Suetterlin, Sara Y Brucker, Andreas Schneeweiss, Markus Wallwiener

JMIR Res Protoc 2025 (May 26); 14:e69855

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Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025 (May 23); 11:e53690

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Evaluating an AI Chatbot “Prostate Cancer Info” for Providing Quality Prostate Cancer Screening Information: Cross-Sectional Study

Otis L Owens, Michael S Leonard

JMIR Cancer 2025 (May 21); 11:e72522

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Trust and Privacy Concerns Among Cancer Survivors Who Did Not Visit a Research Website Offering Free Genetic Counseling Services for Families: Survey Study

James A Shepperd, Colleen M McBride, Weihua An, Jingsong Zhao, Rebecca D Pentz, Cam Escoffery, Kevin Ward, Yue Guan

J Med Internet Res 2025 (May 06); 27:e64228

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Sustainability and Time Trends in Electronic Patient-Reported Outcome Assessment in Routine Cancer Care: Systematic Scoping Review and Follow-Up Survey

Niclas J Hubel, Samuel M Vorbach, Kelly M de Ligt, Ines S Rathgeber, Katharina Beyer, Lisa M Wintner, Barbara Faller, Jasmin Nemec, Bernhard Holzner, Monika Sztankay, Jens Lehmann

J Med Internet Res 2025 (Apr 25); 27:e69398

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A WeChat-Based Decision Aid Intervention to Promote Informed Decision-Making for Family Members Regarding the Genetic Testing of Patients With Colorectal Cancer: Randomized Controlled Trial

Huanhuan Li, Yanjie Zhao, Wei Li, Wenxia Wang, Shengze Zhi, Yifan Wu, Qiqing Zhong, Rui Wang, Jiao Sun

J Med Internet Res 2025 (Apr 21); 27:e60681

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Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project

Marieke Bak, Laura Hartman, Charlotte Graafland, Ida J Korfage, Alena Buyx, Maartje Schermer, 4D PICTURE Consortium

JMIR Cancer 2025 (Apr 10); 11:e65566

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Urologists’ Estimation of Online Support Group Utilization Behavior of Their Patients With Newly Diagnosed Nonmetastatic Prostate Cancer in Germany: Predefined Secondary Analysis of a Randomized Controlled Trial

Philipp Karschuck, Christer Groeben, Rainer Koch, Tanja Krones, Andreas Neisius, Sven von Ahn, Christian Peter Klopf, Steffen Weikert, Michael Siebels, Nicolas Haseke, Christian Weissflog, Martin Baunacke, Christian Thomas, Peter Liske, Georgi Tosev, Thomas Benusch, Martin Schostak, Joachim Stein, Philipp Spiegelhalder, Andreas Ihrig, Johannes Huber

J Med Internet Res 2025 (Apr 07); 27:e56092

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The Effect of Nurse Navigators in Digital Remote Monitoring in Cancer Care: Case Study Using Structural Equation Modeling

Etienne Minvielle, Joel Perez-Torrents, Israa Salma, Philippe Aegerter, Marie Ferrua, Charles Ferté, Henri Leleu, Delphine Mathivon, Claude Sicotte, Mario Di Palma, Florian Scotté

J Med Internet Res 2025 (Mar 28); 27:e66275

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Co-Design of a Depression Self-Management Tool for Adolescent and Young Adult Cancer Survivors: User-Centered Design Approach

Karly M Murphy, Rachel Glock, David Victorson, Madhu Reddy, Sarah A Birken, John M Salsman

JMIR Form Res 2025 (Mar 24); 9:e67175

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Usability, Acceptability, and Barriers to Implementation of a Collaborative Agenda-Setting Intervention (CASI) to Promote Person-Centered Ovarian Cancer Care: Development Study

Rachel A Pozzar, James A Tulsky, Donna L Berry, Jeidy Batista, Paige Barwick, Charlotta J Lindvall, Patricia C Dykes, Michael Manni, Ursula A Matulonis, Nadine J McCleary, Alexi A Wright

JMIR Cancer 2025 (Mar 10); 11:e66801

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Oncology Provider and Patient Perspectives on a Cardiovascular Health Assessment Tool Used During Posttreatment Survivorship Care in Community Oncology (Results from WF-1804CD): Mixed Methods Observational Study

Chandylen L Nightingale, Emily V Dressler, Maura Kepper, Heidi D Klepin, Simon Craddock Lee, Sydney Smith, Aylin Aguilar, Kimberly D Wiseman, Stephanie J Sohl, Brian J Wells, Joseph A DeMari, Alyssa Throckmorton, Lindsey W Kulbacki, Jenny Hanna, Randi E Foraker, Kathryn E Weaver

J Med Internet Res 2025 (Mar 06); 27:e65152

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Leveraging Patient-Reported Outcome Measures for Optimal Dose Selection in Early Phase Cancer Trials

Bill Byrom, Anthony Everhart, Paul Cordero, Chris Garratt, Tim Meyer

JMIR Cancer 2025 (Feb 28); 11:e64611

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Challenges of Cross-Sectoral Video Consultation in Cancer Care on Patients’ Perceived Coordination: Randomized Controlled Trial

Fereshteh Baygi, Theis Bitz Trabjerg, Lars Henrik Jensen, Maria Munch Storsveen, Sonja Wehberg, Jeffrey James Sisler, Jens Søndergaard, Dorte Gilså Hansen

JMIR Cancer 2025 (Feb 11); 11:e60158

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Perceptions in 3.6 Million Web-Based Posts of Online Communities on the Use of Cancer Immunotherapy: Data Mining Using BERTopic

Xingyue Wu, Chun Sing Lam, Ka Ho Hui, Herbert Ho-fung Loong, Keary Rui Zhou, Chun-Kit Ngan, Yin Ting Cheung

J Med Internet Res 2025 (Feb 10); 27:e60948

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Effectiveness of Gastric Cancer Endoscopic Screening in Intermediate-Risk Countries: Protocol for a Systematic Review and Meta-Analysis

Maria Beatriz Mourato, Nuno Pratas, Andreia Branco Pereira, Filipa Taré, Raphael Chança, Inês Fronteira, Rui Dinis, Miguel Areia

JMIR Res Protoc 2025 (Feb 03); 14:e56791

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Constructing TheKeep.Ca With Thrivers of Cancer in Manitoba, Canada, in Support of Enhancing Patient Engagement: Protocol for a Pragmatic Multimethods Study

Maclean Thiessen, Kellie Jewitt, Raina Stromberg, Janelle Marie Lamontagne, Genevieve Richardson Tanguay, Annette Albo, Chantale Thurston, Diana E McMillan

JMIR Res Protoc 2025 (Jan 29); 14:e63597

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Patient Voices: Multimethod Study on the Feasibility of Implementing Electronic Patient-Reported Outcome Measures in a Comprehensive Cancer Center

Cinzia Brunelli, Sara Alfieri, Emanuela Zito, Marco Spelta, Laura Arba, Linda Lombi, Luana Caselli, Augusto Caraceni, Claudia Borreani, Anna Roli, Rosalba Miceli, Gabriele Tine', Ernesto Zecca, Marco Platania, Giuseppe Procopio, Nicola Nicolai, Luigi Battaglia, Laura Lozza, Morena Shkodra, Giacomo Massa, Daniele Loiacono, Giovanni Apolone

JMIR Cancer 2025 (Jan 22); 11:e56625

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How Patients With Cancer Use the Internet to Search for Health Information: Scenario-Based Think-Aloud Study

Fiorella Huijgens, Pascale Kwakman, Marij Hillen, Julia van Weert, Monique Jaspers, Ellen Smets, Annemiek Linn

JMIR Infodemiology 2025 (Jan 16); 5:e59625

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