This paper is in the following e-collection/theme issue:

Breast Cancer (201) Human Factors and Usability Case Studies (748) Formative Studies and eHealth/mHealth Development (516) Focus Groups and Qualitative Research for Human Factors Research (781) Formative Evaluation of Digital Health Interventions (2226)

Published on in Vol 4, No 1 (2018): Jan-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9210, first published .
Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study

Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study

Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study

Authors of this article:

Maria C Katapodi1, 2 Author Orcid Image ;   Miyeon Jung3 Author Orcid Image ;   Ann M Schafenacker2 Author Orcid Image ;   Kara J Milliron4 Author Orcid Image ;   Kari E Mendelsohn-Victor2 Author Orcid Image ;   Sofia D Merajver5, 6 Author Orcid Image ;   Laurel L Northouse2 Author Orcid Image
Article Authors Cited by (19) Tweetations (24) Metrics

Journals

  1. McCarthy A. Persistent Underutilization of BRCA1/2 Testing Suggest the Need for New Approaches to Genetic Testing Delivery. JNCI: Journal of the National Cancer Institute 2019;111(8):751 View
  2. Katapodi M, Ellis K, Schmidt F, Nikolaidis C, Northouse L. Predictors and interdependence of family support in a random sample of long‐term young breast cancer survivors and their biological relatives. Cancer Medicine 2018;7(10):4980 View
  3. Kehm R, Lloyd S, Terry M. Reducing Breast Cancer Risk Across Generations Through Family-Based Interventions. Current Epidemiology Reports 2020;7(3):132 View
  4. Starkings R, Shilling V, Jenkins V, Fallowfield L. A systematic review of communication interventions to help healthcare professionals discuss genetic testing for breast cancer. Breast Cancer Research and Treatment 2020;183(1):9 View
  5. Plichta J, Sebastian M, Smith L, Menendez C, Johnson A, Bays S, Euhus D, Clifford E, Jalali M, Kurtzman S, Taylor W, Hughes K. Germline Genetic Testing: What the Breast Surgeon Needs to Know. Annals of Surgical Oncology 2019;26(7):2184 View
  6. Dean M, Tezak A, Johnson S, Pierce J, Weidner A, Clouse K, Pal T, Cragun D. Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers. Patient Education and Counseling 2021;104(4):720 View
  7. Everett J, Burgos G, Chun J, Baptiste A, Khanna L, Oberstein P, Simeone D. Cancer surveillance awareness and practice among families at increased risk for pancreatic adenocarcinoma. Cancer 2021;127(13):2271 View
  8. Baroutsou V, Underhill-Blazey M, Appenzeller-Herzog C, Katapodi M. Interventions Facilitating Family Communication of Genetic Testing Results and Cascade Screening in Hereditary Breast/Ovarian Cancer or Lynch Syndrome: A Systematic Review and Meta-Analysis. Cancers 2021;13(4):925 View
  9. Goodman S, Skirton H, Jackson L, Jones R. Development of a Secure Website to Facilitate Information Sharing in Families at High Risk of Bowel Cancer—The Familyweb Study. Cancers 2021;13(10):2404 View
  10. Kim S, Aceti M, Baroutsou V, Bürki N, Caiata-Zufferey M, Cattaneo M, Chappuis P, Ciorba F, Graffeo-Galbiati R, Heinzelmann-Schwarz V, Jeong J, Jung M, Kim S, Kim J, Lim M, Ming C, Monnerat C, Park H, Park S, Pedrazzani C, Rabaglio M, Ryu J, Saccilotto R, Wieser S, Zürrer-Härdi U, Katapodi M. Using a Tailored Digital Health Intervention for Family Communication and Cascade Genetic Testing in Swiss and Korean Families With Hereditary Breast and Ovarian Cancer: Protocol for the DIALOGUE Study. JMIR Research Protocols 2021;10(6):e26264 View
  11. McGarrigle S, Prizeman G, Spillane C, Byrne N, Drury A, Mockler D, Connolly E, Brady A, Hanhauser Y. Decision aids for female BRCA mutation carriers: a scoping review protocol. BMJ Open 2021;11(7):e045075 View
  12. Torr B, Jones C, Choi S, Allen S, Kavanaugh G, Hamill M, Garrett A, MacMahon S, Loong L, Reay A, Yuan L, Valganon Petrizan M, Monson K, Perry N, Fallowfield L, Jenkins V, Gold R, Taylor A, Gabe R, Wiggins J, Lucassen A, Manchanda R, Gandhi A, George A, Hubank M, Kemp Z, Evans D, Bremner S, Turnbull C. A digital pathway for genetic testing in UK NHS patients with cancer: BRCA-DIRECT randomised study internal pilot. Journal of Medical Genetics 2022;59(12):1179 View
  13. Law W, Yaremych H, Ferrer R, Richardson E, Wu Y, Turbitt E. Decision-making about genetic health information among family dyads: a systematic literature review. Health Psychology Review 2022;16(3):412 View
  14. Pollard S, Weymann D, Loewen R, Nuk J, Sun S, Schrader K, Hessels C, Regier D. Development and early‐stage evaluation of a patient portal to enhance familial communication about hereditary cancer susceptibility testing: A patient‐driven approach. Health Expectations 2023;26(2):774 View
  15. Dwyer A, Uveges M, Dockray S, Smith N. Exploring Rare Disease Patient Attitudes and Beliefs regarding Genetic Testing: Implications for Person-Centered Care. Journal of Personalized Medicine 2022;12(3):477 View
  16. Nikolaidis C, Ming C, Pedrazzani C, van der Horst T, Kaiser-Grolimund A, Ademi Z, Bührer-Landolt R, Bürki N, Caiata-Zufferey M, Champion V, Chappuis P, Kohler C, Erlanger T, Graffeo R, Hampel H, Heinimann K, Heinzelmann-Schwarz V, Kurzeder C, Monnerat C, Northouse L, Pagani O, Probst-Hensch N, Rabaglio M, Schoenau E, Sijbrands E, Taborelli M, Urech C, Viassolo V, Wieser S, Katapodi M. Challenges and Opportunities for Cancer Predisposition Cascade Screening for Hereditary Breast and Ovarian Cancer and Lynch Syndrome in Switzerland: Findings from an International Workshop. Public Health Genomics 2018;21(3-4):121 View
  17. Seven M, Shah L, Yazici H, Daack-Hirsch S. From Probands to Relatives. Cancer Nursing 2022;45(1):E91 View
  18. Thomas J, Keels J, Calzone K, Badzek L, Dewell S, Patch C, Tonkin E, Dwyer A. Current State of Genomics in Nursing: A Scoping Review of Healthcare Provider Oriented (Clinical and Educational) Outcomes (2012–2022). Genes 2023;14(11):2013 View
  19. Baroutsou V, Duong V, Signorini A, Saccilotto R, Ciorba F, Bürki N, Caiata-Zufferey M, Ryu J, Kim S, Lim M, Monnerat C, Zürrer-Härdi U, Kim J, Heinimann K, Graffeo R, Park J, Rabaglio M, Chappuis P, Kim S, Katapodi M. Acceptability and Usability of the Family Gene Toolkit for Swiss and Korean Families Harboring BRCA1/BRAC2 Pathogenic Variants: A Web-Based Platform for Cascade Genetic Testing. Cancers 2023;15(18):4485 View