Questionnaires and Research Instruments for Cancer Patients

Uncovering the Daily Experiences of People Living With Advanced Cancer Using an Experience Sampling Method Questionnaire: Development, Content Validation, and Optimization Study

Joran Geeraerts, Lara Pivodic, Lise Rosquin, Eline Naert, Geert Crombez, Mark De Ridder, Lieve Van den Block

JMIR Cancer 2024 (Nov 05); 10:e57510

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Application of Patient-Reported Outcome Measurements in Adult Tumor Clinical Trials in China: Cross-Sectional Study

Yan Jia, Qi Li, Xiaowen Zhang, Yi Yan, Shiyan Yan, Shunping Li, Wei Li, Xiaowen Wu, Hongguo Rong, Jianping Liu

J Med Internet Res 2024 (May 08); 26:e45719

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Developing a Core Outcome Set for Prognostic Research in Palliative Cancer Care: Protocol for a Mixed Methods Study

Caitlin Spooner, Bella Vivat, Nicola White, Patrick Stone

JMIR Res Protoc 2023 (Sep 01); 12:e49774

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Ensuring a Successful Transition From Cytology to Human Papillomavirus–Based Primary Cervical Cancer Screening in Canada by Investigating the Psychosocial Correlates of Women’s Intentions: Protocol for an Observational Study

Gabrielle Griffin-Mathieu, Ben Haward, Ovidiu Tatar, Patricia Zhu, Samara Perez, Gilla K Shapiro, Emily McBride, Erika L Thompson, Laurie W Smith, Aisha K Lofters, Ellen M Daley, Juliet R Guichon, Jo Waller, Marc Steben, Kathleen M Decker, Marie-Helene Mayrand, Julia M L Brotherton, Gina S Ogilvie, Gregory D Zimet, Teresa Norris, Zeev Rosberger

JMIR Res Protoc 2022 (Jun 16); 11(6):e38917

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Web-Based Return of Individual Patient-Reported Outcome Results Among Patients With Lymphoma: Randomized Controlled Trial

Simone Oerlemans, Lindy Paulina Johanna Arts, Jacobien M Kieffer, Judith Prins, Mels Hoogendoorn, Marjolein van der Poel, Ad Koster, Chantal Lensen, Wendy Bernadina Catharina Stevens, Djamila Issa, Johannes F M Pruijt, Margriet Oosterveld, René van der Griend, Marten Nijziel, Lidwine Tick, Eduardus F M Posthuma, Lonneke V van de Poll-Franse

J Med Internet Res 2021 (Dec 14); 23(12):e27886

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Increasing Participation Rates in Germany’s Skin Cancer Screening Program (HELIOS): Protocol for a Mixed Methods Study

Theresa Steeb, Markus V Heppt, Michael Erdmann, Anja Wessely, Stefanie J Klug, Carola Berking

JMIR Res Protoc 2021 (Dec 13); 10(12):e31860

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A Digital Self-management Program (Help to Overcome Problems Effectively) for People Living With Cancer: Feasibility Randomized Controlled Trial

Hayley Wright, Faith Martin, Wendy Clyne, Cain C T Clark, Gabriela Matouskova, Michael McGillion, Andrew Turner

J Med Internet Res 2021 (Nov 05); 23(11):e28322

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Measuring the Time to Deterioration for Health-Related Quality of Life in Patients With Metastatic Breast Cancer Using a Web-Based Monitoring Application: Longitudinal Cohort Study

Katharina Brusniak, Manuel Feisst, Linda Sebesteny, Andreas Hartkopf, Joachim Graf, Tobias Engler, Andreas Schneeweiss, Markus Wallwiener, Thomas Maximilian Deutsch

JMIR Cancer 2021 (Oct 12); 7(4):e25776

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Electronic Video Consent to Power Precision Health Research: A Pilot Cohort Study

Arash Naeim, Sarah Dry, David Elashoff, Zhuoer Xie, Antonia Petruse, Clara Magyar, Liliana Johansen, Gabriela Werre, Clara Lajonchere, Neil Wenger

JMIR Form Res 2021 (Sep 08); 5(9):e29123

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The Effect of Collaborative Reviews of Electronic Patient-Reported Outcomes on the Congruence of Patient- and Clinician-Reported Toxicity in Cancer Patients Receiving Systemic Therapy: Prospective, Multicenter, Observational Clinical Trial

Andreas Trojan, Nicolas Leuthold, Christoph Thomssen, Achim Rody, Thomas Winder, Andreas Jakob, Claudine Egger, Ulrike Held, Christian Jackisch

J Med Internet Res 2021 (Aug 05); 23(8):e29271

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Strategies for the Identification and Prevention of Survey Fraud: Data Analysis of a Web-Based Survey

Mandi Pratt-Chapman, Jenna Moses, Hannah Arem

JMIR Cancer 2021 (Jul 16); 7(3):e30730

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Awareness of the Signs, Symptoms, and Risk Factors of Cancer and the Barriers to Seeking Help in the UK: Comparison of Survey Data Collected Online and Face-to-Face

Katie Connor, Briony Hudson, Emily Power

JMIR Cancer 2020 (Jan 17); 6(1):e14539

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Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Stacey McCaffrey, Ryan A Black, Mitchell Nagao, Marjan Sepassi, Gaurav Sharma, Susan Thornton, Youn H Kim, Julia Braverman

J Med Internet Res 2019 (Jan 07); 21(1):e11302

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Addressing Participant Validity in a Small Internet Health Survey (The Restore Study): Protocol and Recommendations for Survey Response Validation

James Dewitt, Benjamin Capistrant, Nidhi Kohli, B R Simon Rosser, Darryl Mitteldorf, Enyinnaya Merengwa, William West

JMIR Res Protoc 2018 (Apr 24); 7(4):e96

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eHealth System for Collecting and Utilizing Patient Reported Outcome Measures for Personalized Treatment and Care (PROMPT-Care) Among Cancer Patients: Mixed Methods Approach to Evaluate Feasibility and Acceptability

Afaf Girgis, Ivana Durcinoska, Janelle V Levesque, Martha Gerges, Tiffany Sandell, Anthony Arnold, Geoff P Delaney, The PROMPT-Care Program Group

J Med Internet Res 2017 (Oct 02); 19(10):e330

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Assessing the Comparability of Paper and Electronic Versions of the EORTC QOL Module for Head and Neck Cancer: A Qualitative Study

Josephine Norquist, Diana Chirovsky, Teja Munshi, Chloe Tolley, Charlotte Panter, Adam Gater

JMIR Cancer 2017 (May 12); 3(1):e7

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Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial

Ellen Kilsdonk, Eline van Dulmen-den Broeder, Helena J van der Pal, Nynke Hollema, Leontien C Kremer, Marry M van den Heuvel-Eibrink, Flora E van Leeuwen, Monique W Jaspers, Marleen H van den Berg

JMIR Cancer 2015 (Nov 24); 1(2):e11

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