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Assessing the Data Quality Dimensions of Partial and Complete Mastectomy Cohorts in the All of Us Research Program: Cross-Sectional Study

Assessing the Data Quality Dimensions of Partial and Complete Mastectomy Cohorts in the All of Us Research Program: Cross-Sectional Study

We created a cohort of 4175 (2.4%) patients with mastectomy procedures and a control cohort of 168,226 (97.6%) female participants who did not have a mastectomy. Out of the 4175 female participants who had mastectomy procedures, 316 (7.6%) had both partial and complete mastectomy procedures. The first occurrence of the procedure code was used for subgroup assignment.

Matthew Spotnitz, John Giannini, Yechiam Ostchega, Stephanie L Goff, Lakshmi Priya Anandan, Emily Clark, Tamara R Litwin, Lew Berman

JMIR Cancer 2025;11:e59298

Exploring the Social Media Discussion of Breast Cancer Treatment Choices: Quantitative Natural Language Processing Study

Exploring the Social Media Discussion of Breast Cancer Treatment Choices: Quantitative Natural Language Processing Study

SNOMED keywords related to BCS or mastectomy were identified by a physician author (DYS). Examples of SNOMED words or phrases used in this analysis include simple mastectomy, bilateral mastectomy, and modified radical mastectomy as mastectomy keywords and lumpectomy, excision biopsy, and segmental mastectomy as BCS keywords. Analyses of paragraphs were based on references to BCS or mastectomy, nonexclusively. Paragraphs containing mentions of both were attributed to both treatments in the analysis.

Daphna Y Spiegel, Isabel D Friesner, William Zhang, Travis Zack, Gianna Yan, Julia Willcox, Nicolas Prionas, Lisa Singer, Catherine Park, Julian C Hong

JMIR Cancer 2025;11:e52886