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Defining and Risk-Stratifying Immunosuppression (the DESTINIES Study): Protocol for an Electronic Delphi Study

Defining and Risk-Stratifying Immunosuppression (the DESTINIES Study): Protocol for an Electronic Delphi Study

Access Independent Advisory Group UK Scientific Advisory Group for Emergencies Independent Scientific Advisory Group for Emergencies Centers for Disease Control and Prevention Advisory Committee on Immunization Practices Food and Drug Administration Vaccine Advisory Panel The Nuffield Department of Primary Care Health Sciences The Nuffield Department of Medicine Beyond this, inclusion will be dependent upon the credentials of prospective panelists—clinical, academic, or policymaking experience in vaccinology or immunology

Meredith Leston, José Ordóñez-Mena, Mark Joy, Simon de Lusignan, Richard Hobbs, Iain McInnes, Lennard Lee

JMIR Res Protoc 2024;13:e56271

Digital Outcome Measurement to Improve Care for Patients With Immune-Mediated Inflammatory Diseases: Protocol for the IMID Registry

Digital Outcome Measurement to Improve Care for Patients With Immune-Mediated Inflammatory Diseases: Protocol for the IMID Registry

Patients are recruited from the departments of rheumatology, immunology, gastroenterology, and dermatology. A steering committee was also formed and included representatives of all participating departments. All representatives were involved in the design of the registry and selection of outcome measures. The cohort combines provider-reported outcomes and PROs. On request, clinical and administrative data can be exported from the EHR and pharmacy database.

Agnes E M Looijen, Reinier C A van Linschoten, Jan-Dietert Brugma, Dirk Jan Hijnen, Pascal H P de Jong, P Hugo M van der Kuy, Jan A M van Laar, C Janneke van der Woude, Annelieke Pasma

JMIR Res Protoc 2023;12:e43230