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Web-Based Patient Educational Material on Osteosarcoma: Quantitative Assessment of Readability and Understandability

Web-Based Patient Educational Material on Osteosarcoma: Quantitative Assessment of Readability and Understandability

Osteosarcoma is a primary malignancy of the bone, affecting 3.4 million individuals globally each year, and is the third most common cancer in the adolescent population [1]. The current treatment for osteosarcoma consists of complete surgical resection coupled with neoadjuvant and adjuvant chemotherapy. Though the introduction of adjuvant chemotherapy in the 1970s has greatly improved survival [2], the diagnosis of osteosarcoma is a significant, life-altering event for patients.

Trevor Robert R. Gulbrandsen, Mary Kate Skalitzky, Alan Gregory Shamrock, Burke Gao, Obada Hasan, Benjamin James Miller

JMIR Cancer 2022;8(1):e25005

Quality of Life of Patients With Osteosarcoma in the European American Osteosarcoma Study-1 (EURAMOS-1): Development and Implementation of a Questionnaire Substudy

Quality of Life of Patients With Osteosarcoma in the European American Osteosarcoma Study-1 (EURAMOS-1): Development and Implementation of a Questionnaire Substudy

Treatment outcomes for patients diagnosed during adolescence and young adulthood with the most common bone sarcomas, osteosarcoma (OS), and Ewing sarcoma have improved over the past 30 years with the evidence-based introduction of intensive chemotherapy, wide-margin surgery, and, for some, radiation treatment [1-5]. The 5-year survival rate has improved especially for patients aged younger than 25 years [6].

Gabriele Calaminus, Meriel Jenney, Lars Hjorth, Katja Baust, Mark Bernstein, Stefan Bielack, Patricia De Vos, Pancras C W Hogendoorn, Gordana Jovic, Mark Krailo, Kiana Kreitz, Neyssa Marina, Babasola O Popoola, Cristina Sauerland, Sigbjørn Smeland, Carmen Teske, Clara V Schweinitz, Jeremy Whelan, Andreas Wiener, Matthew R Sydes, Rajaram Nagarajan

JMIR Res Protoc 2019;8(9):e14406