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Ethics approval was granted by the University of Virginia Health Sciences Institutional Review Board (HSR IRB 21017), and all participants provided informed consent before data collection. The participants were shown prototypes or pictures of the BESI-C system during the informed consent process to better understand the project.
Patients and family caregivers were recruited from an outpatient palliative care clinic at an academic medical center in the southeastern United States.
JMIR Cancer 2022;8(3):e36879
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Institutional Review Board (University of Virginia Social & Behavioral Sciences IRB, #4985) approval has been granted.
Work began on Specific Aim 1 in November 2021 and Specific Aim 2 in April 2022. Participant recruitment is expected to begin in summer 2022. We expect preliminary results to be available in fall 2022.
JMIR Res Protoc 2022;11(5):e37975
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Before data collection, approval was granted by the University of Virginia Health Sciences Institutional Review Board. Both patients and caregivers provided informed consent. A study guide was created, informed by the literature and the research study aims (Multimedia Appendix 1). In addition to basic demographic questions, the study guide consisted of 3 parts.
Part 1 consisted of open-ended questions regarding general challenges and concerns in managing cancer pain at home.
JMIR Form Res 2020;4(8):e20836
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Importantly, the design of BESI-C has been informed by end-user feedback gathered during qualitative interviews with cancer patient-family caregiver dyads (Phase 1, Figure 1) recruited from The University of Virginia Palliative Care Clinic.
JMIR Res Protoc 2019;8(12):e16178
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