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Patient-level barriers include failure to report symptoms to clinicians [11], desire to be a “good patient” to avoid conflict [12-14], concern over side effects of prescribed medications [12,15], and a perception that during cancer treatment symptoms are inevitable or untreatable [4]. A patient-centered approach to health care can minimize these barriers.
JMIR Res Protoc 2023;12:e50993
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The key functionalities were derived from an iterative process, including patients, clinical trialists, administrators, NCI, and Food and Drug Administration stakeholders, and included the following:
Professional (clinician and research associate) interface: This includes a form builder that enables selection of PRO-CTCAE items and a configurable alert system that activates emails if patients miss a scheduled self-report or patients self-report a severe or worsening AE.
JMIR Hum Factors 2018;5(3):e10070
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