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For the full selection procedure, see Figure 1 and the flowchart in the paper by van Eenbergen et al [10]. For this study, we included only the population-based participants who used the internet.
Flowchart of the data collection process. OCC: online cancer community.
For the OCC group, in 2017, we approached members of the Kanker platform who indicated that they wanted to participate in research.
JMIR Cancer 2022;8(1):e19379
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Participants started at the left top figure (A), and could decide what type of information they wished to see (B, C). PCa: prostate cancer.
Each session started with an explanation of the procedure, signing informed consent, and a questionnaire that assessed sociodemographic information (age, gender, education, work, marital status, and children) and disease-related information (year of diagnosis, type of cancer). Participants were then instructed on how to think aloud.
JMIR Cancer 2021;7(4):e25659
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