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Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE

The detailed procedure is outlined by van den Berg et al [25]. Fertility impairment data on male survivors were unfortunately not available in most of the cohorts; therefore, we will analyze female survivors only. Hearing impairment data (yes or no) were collected together with information on HRQo L via questionnaires. Questions on hearing impairment differed slightly between data providers. Data on hearing impairment were not available for the Dutch cohort.

Gabriele Calaminus, Katja Baust, Claire Berger, Julianne Byrne, Harald Binder, Leonie Casagranda, Desiree Grabow, Martha Grootenhuis, Peter Kaatsch, Melanie Kaiser, Tomas Kepak, Kateřina Kepáková, Leontien C M Kremer, Jarmila Kruseova, Ales Luks, Claudia Spix, Marleen van den Berg, Marry M M van den Heuvel-Eibrink, Eline van Dulmen-den Broeder, Rahel Kuonen, Grit Sommer, Claudia Kuehni

JMIR Res Protoc 2021;10(1):e21851

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Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE)

Marleen van den Berg, Marloes van Dijk, Julianne Byrne, Helen Campbell, Claire Berger, Anja Borgmann-Staudt, Gabriele Calaminus, Uta Dirksen, Jeanette F. Winther, Sophie D. Fossa, Desiree Grabow, Victoria L. Grandage, Marry M. van den Heuvel-Eibrink, Melanie Kaiser, Tomas Kepak, Leontien C. Kremer, Jarmila Kruseova, Claudia E. Kuehni, Cornelis B. Lambalk, Flora E. van Leeuwen, Alison Leiper, Dalit Modan-Moses, Vera Morsellino, Claudia Spix, Peter Kaatsch, Eline van Dulmen-den Broeder, The PanCareLIFE Consortium

JMIR Res Protoc 2018;7(9):e10824

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Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial

In a recent study by Van den Berg et al [24], no differences were found in participation rates of female CCSs invited to complete either a paper- or a Web-based questionnaire. However, the CCSs who were invited through a paper-based questionnaire preferred completing the paper-based over the Web-based version. Our study confirms these results, although this study also showed that offering a paper-based questionnaire with a reminder contact ultimately does not influence the participation rate.

Ellen Kilsdonk, Eline van Dulmen-den Broeder, Helena J van der Pal, Nynke Hollema, Leontien C Kremer, Marry M van den Heuvel-Eibrink, Flora E van Leeuwen, Monique W Jaspers, Marleen H van den Berg