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Examining BRCA Previvors’ Social Media Content Creation as a Form of Self and Community Care: Qualitative Interview Study

Examining BRCA Previvors’ Social Media Content Creation as a Form of Self and Community Care: Qualitative Interview Study

Women who test positive for a BRCA genetic mutation are at a higher risk of developing hereditary breast and ovarian cancer, which impacts their health, reproductive choices, and identity [10,11]. Within their lifetime, individuals with a BRCA mutation have up to a 75% increased risk in developing breast or ovarian cancer [12].

Mariah L Wellman, Camilla M Owens, Avery E Holton, Kimberly A Kaphingst

J Med Internet Res 2025;27:e67794

Racial Composition of Social Environments Over the Life Course Using the Pictorial Racial Composition Measure: Development and Validation Study

Racial Composition of Social Environments Over the Life Course Using the Pictorial Racial Composition Measure: Development and Validation Study

Perceived neighborhood racial composition (PNRC) is an investigator-adapted and self-reported measure of the racial composition of a participant’s community [14]. The PNRC measure is limited in several ways. First, it focuses on a single neighborhood aspect [15]. Second, it does not address the difference that an individual may experience on a daily basis when moving between their home and school (or work) [16].

Jemar R Bather, Kimberly A Kaphingst, Melody S Goodman

JMIR Public Health Surveill 2024;10:e55461

Correction: Identifying Patients Who Meet Criteria for Genetic Testing of Hereditary Cancers Based on Structured and Unstructured Family Health History Data in the Electronic Health Record: Natural Language Processing Approach

Correction: Identifying Patients Who Meet Criteria for Genetic Testing of Hereditary Cancers Based on Structured and Unstructured Family Health History Data in the Electronic Health Record: Natural Language Processing Approach

changed to: Algorithms were developed based on the National Comprehensive Cancer Network (NCCN) guidelines for genetic testing for hereditary breast, ovarian, pancreatic, and colorectal cancers. (2) Textbox 1 has been revised for clarity and accuracy, and to comply with the citation guidelines of the National Comprehensive Cancer Network (NCCN). (3) In the originally published paper, the following sentence was present in the Background section: The National Comprehensive Cancer Network (NCCN) has published a

Jianlin Shi, Keaton L Morgan, Richard L Bradshaw, Se-Hee Jung, Wendy Kohlmann, Kimberly A Kaphingst, Kensaku Kawamoto, Guilherme Del Fiol

JMIR Med Inform 2022;10(9):e42533

Dissemination of a Web-Based Tool for Supporting Health Insurance Plan Decisions (Show Me Health Plans): Cross-Sectional Observational Study

Dissemination of a Web-Based Tool for Supporting Health Insurance Plan Decisions (Show Me Health Plans): Cross-Sectional Observational Study

Each time a user logged on to the tool, a unique session ID was generated, which enabled each visit to be tracked. Each time a page on the tool was accessed, a tracking database stored the session ID, date and time, as well as user actions (ie, whether they logged in, logged out, viewed the page, or redirected). Session IDs were randomly generated and created so that users could not be identified. Knowledge was measured using eight questions in the Let’s Review section.

Jingsong Zhao, Nageen Mir, Nicole Ackermann, Kimberly A Kaphingst, Mary C Politi

J Med Internet Res 2018;20(6):e209

Implementing an Internet-Delivered Skin Cancer Genetic Testing Intervention to Improve Sun Protection Behavior in a Diverse Population: Protocol for a Randomized Controlled Trial

Implementing an Internet-Delivered Skin Cancer Genetic Testing Intervention to Improve Sun Protection Behavior in a Diverse Population: Protocol for a Randomized Controlled Trial

However, the Internet gives engaged individuals a direct method of accessing health information on a breadth of topics, and represents one of the most frequent reasons that individuals consult the Internet. A 2012 Pew Research Center Survey found that most general Internet users (66% of Hispanics; 73% of non-Hispanic whites) used the Internet to find health information [76]. A recent study indicated that Hispanics are highly receptive to online cancer information [77].

Jennifer L Hay, Marianne Berwick, Kate Zielaskowski, Kirsten AM White, Vivian M Rodríguez, Erika Robers, Dolores D Guest, Andrew Sussman, Yvonne Talamantes, Matthew R Schwartz, Jennie Greb, Jessica Bigney, Kimberly A Kaphingst, Keith Hunley, David B Buller

JMIR Res Protoc 2017;6(4):e52

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Although previous studies have examined Web-based searching for health information in general, limited information is available about the Web-based searching experience of people who are living with a rare or genetic disease. A 2001 study on use of the Internet for genetics-related information found that a majority of individuals surveyed searched the Internet for genetics-related information after visiting a genetics clinic.

Tamandra Morgan, Johanna Schmidt, Christy Haakonsen, Janine Lewis, Maria Della Rocca, Stephanie Morrison, Barbara Biesecker, Kimberly A. Kaphingst

JMIR Res Protoc 2014;3(1):e10