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Effectiveness and Cost-Effectiveness of Survivorship Care for Survivors of Hodgkin Lymphoma (INSIGHT Study): Protocol for a Multicenter Retrospective Cohort Study With a Quasi-Experimental Design

www.zorginstituutnederland.nl/over-ons/publicaties/publicatie/2024/01/16/richtlijn-voor-het-uitvoeren-van-economische-evaluaties-in-de-gezondheidszorgE-Health / Health Services Research and New Models of Care

Eline M J Lammers, Josée M Zijlstra, Valesca P Retèl, Berthe M P Aleman, Flora E van Leeuwen, Annelies Nijdam, BETER consortium

JMIR Res Protoc 2024;13:e55601

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Long-Term Morbidity and Health After Early Menopause Due to Oophorectomy in Women at Increased Risk of Ovarian Cancer: Protocol for a Nationwide Cross-Sectional Study With Prospective Follow-Up (HARMOny Study)

The study has been approved in writing by the Medical Ethics Committee of the Antoni van Leeuwenhoek/Netherlands Cancer Institute (AVL/NKI) to be conducted in all nine University Medical Centers and the Antoni van Leeuwenhoek and has been registered at “CCMO Toetsingonline” from the Dutch Central Committee on Research involving Human Subjects (file number NL63554.031.17) and on Clinical Trials.gov (NCT03835793). Written informed consent will be collected from the participants.

Lara Terra, Maartje J Hooning, Bernadette A M Heemskerk-Gerritsen, Marc van Beurden, Jeanine E Roeters van Lennep, Helena C van Doorn, Joanne A de Hullu, Constantijne Mom, Eleonora B L van Dorst, Marian J E Mourits, Brigitte F M Slangen, Katja N Gaarenstroom, M Carola Zillikens, Tim Leiner, Lizet van der Kolk, Margriet Collee, Marijke Wevers, Margreet G E M Ausems, Klaartje van Engelen, Lieke PV Berger, Christi J van Asperen, Encarna B Gomez-Garcia, Irma van de Beek, Matti A Rookus, Michael Hauptmann, Eveline M Bleiker, Sanne B Schagen, Neil K Aaronson, Angela H E M Maas, Flora E van Leeuwen

JMIR Res Protoc 2021;10(1):e24414

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Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE)

Marleen van den Berg, Marloes van Dijk, Julianne Byrne, Helen Campbell, Claire Berger, Anja Borgmann-Staudt, Gabriele Calaminus, Uta Dirksen, Jeanette F. Winther, Sophie D. Fossa, Desiree Grabow, Victoria L. Grandage, Marry M. van den Heuvel-Eibrink, Melanie Kaiser, Tomas Kepak, Leontien C. Kremer, Jarmila Kruseova, Claudia E. Kuehni, Cornelis B. Lambalk, Flora E. van Leeuwen, Alison Leiper, Dalit Modan-Moses, Vera Morsellino, Claudia Spix, Peter Kaatsch, Eline van Dulmen-den Broeder, The PanCareLIFE Consortium

JMIR Res Protoc 2018;7(9):e10824

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Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial

In a recent study by Van den Berg et al [24], no differences were found in participation rates of female CCSs invited to complete either a paper- or a Web-based questionnaire. However, the CCSs who were invited through a paper-based questionnaire preferred completing the paper-based over the Web-based version. Our study confirms these results, although this study also showed that offering a paper-based questionnaire with a reminder contact ultimately does not influence the participation rate.

Ellen Kilsdonk, Eline van Dulmen-den Broeder, Helena J van der Pal, Nynke Hollema, Leontien C Kremer, Marry M van den Heuvel-Eibrink, Flora E van Leeuwen, Monique W Jaspers, Marleen H van den Berg