This paper is in the following e-collection/theme issue:

Reviews on Innovations in Cancer (26) Peer-to-Peer Support and Online Communities (593)

Published on in Vol 3, No 2 (2017): Jul-Dec

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review

Authors of this article:

Mies C van Eenbergen1 Author Orcid Image ;   Lonneke V van de Poll-Franse1, 2 Author Orcid Image ;   Peter Heine3 Author Orcid Image ;   Floortje Mols4 Author Orcid Image
Article Authors Cited by (42) Tweetations (12) Metrics

Journals

  1. Kashian N, Jacobson S. Factors of Engagement and Patient-Reported Outcomes in a Stage IV Breast Cancer Facebook Group. Health Communication 2020;35(1):75 View
  2. Park K, Eum S, Oh H, Cho M, Chang H, Lee Y, Kim S, Park C, Murakami M. Factors affecting online health community participation behavior in patients with thyroid cancer. PLOS ONE 2020;15(6):e0235056 View
  3. Verberne S, Batenburg A, Sanders R, van Eenbergen M, Das E, Lambooij M. Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach. JMIR Cancer 2019;5(1):e9887 View
  4. Naveh S, Bronstein J. Sense making in complex health situations. Aslib Journal of Information Management 2019;71(6):789 View
  5. van Eenbergen M, Vromans R, Boll D, Kil P, Vos C, Krahmer E, Mols F, van de Poll‐Franse L. Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017. Cancer 2020;126(2):408 View
  6. Plinsinga M, Besomi M, Maclachlan L, Melo L, Robbins S, Lawford B, Teo P, Mills K, Setchell J, Egerton T, Eyles J, Hall L, Mellor R, Hunter D, Hodges P, Vicenzino B, Bennell K. Exploring the Characteristics and Preferences for Online Support Groups: Mixed Method Study. Journal of Medical Internet Research 2019;21(12):e15987 View
  7. van Eenbergen M, van de Poll-Franse L, Krahmer E, Verberne S, Mols F. Analysis of Content Shared in Online Cancer Communities: Systematic Review. JMIR Cancer 2018;4(1):e6 View
  8. Westmaas J, Fallon E, McDonald B, Driscoll D, Richardson K, Portier K, Smith T. Investigating relationships among cancer survivors’ engagement in an online support community, social support perceptions, well-being, and moderating effects of existing (offline) social support. Supportive Care in Cancer 2020;28(8):3791 View
  9. Werdani Y, Silab P. Self-Efficacy Affects Cancer Patients in Solving Problems, Seeking Support and Avoiding Problems as Coping Mechanisms. Nurse Media Journal of Nursing 2020;10(2):146 View
  10. Sanders R, Araujo T, Vliegenthart R, van Eenbergen M, van Weert J, Linn A. Patients’ Convergence of Mass and Interpersonal Communication on an Online Forum: Hybrid Methods Analysis. Journal of Medical Internet Research 2020;22(10):e18303 View
  11. Harkin L, Beaver K, Dey P, Choong K. Secret groups and open forums: Defining online support communities from the perspective of people affected by cancer. DIGITAL HEALTH 2020;6:205520761989899 View
  12. Feldhege J, Moessner M, Bauer S. Who says what? Content and participation characteristics in an online depression community. Journal of Affective Disorders 2020;263:521 View
  13. Gunturu K, Dizon D, Johnson J, Mercurio A, Mason G, Sparks D, Lawton W, Klemp J. Clinical Trials in the Era of Digital Engagement: A SWOG Call to Action. JCO Clinical Cancer Informatics 2020;(4):254 View
  14. Lange L, Schulz H, Bleich C. E-Health-Angebote in der Onkologie. Der Onkologe 2018;24(5):406 View
  15. Constantinou C, Kolokotroni O, Mosquera M, Heraclides A, Demetriou C, Karayiannis P, Quattrocchi A, Charalambous A. Developing a holistic contingency plan: Challenges and dilemmas for cancer patients during the COVID‐19. Cancer Medicine 2020;9(17):6082 View
  16. Syrjala K, Crouch M, Leisenring W, Flowers M, Artherholt S, Fiscalini A, Romano E, Romano J, Martin P, Yi J. Engagement with INSPIRE, an Online Program for Hematopoietic Cell Transplantation Survivors. Biology of Blood and Marrow Transplantation 2018;24(8):1692 View
  17. Dau H, Safari A, Saad El Din K, McTaggart-Cowan H, Loree J, Gill S, De Vera M. Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: an international cross-sectional survey. BMC Cancer 2020;20(1) View
  18. Johansson V, Islind A, Lindroth T, Angenete E, Gellerstedt M. Online Communities as a Driver for Patient Empowerment: Systematic Review. Journal of Medical Internet Research 2021;23(2):e19910 View
  19. Tolby L, Hofmeister E, Fisher S, Chao S, Benedict C, Kurian A, Berek J, Schapira L, Palesh O. Patterns of social media use and associations with psychosocial outcomes among breast and gynecologic cancer survivors. Journal of Cancer Survivorship 2021;15(5):677 View
  20. Walsh C, Al Achkar M. A qualitative study of online support communities for lung cancer survivors on targeted therapies. Supportive Care in Cancer 2021;29(8):4493 View
  21. Pyle D, Perry A, Lamont‐Mills A, Tehan G, Chambers S. A scoping review of the characteristics and benefits of online prostate cancer communities. Psycho-Oncology 2021;30(5):659 View
  22. Allison K, Patterson P, Guilbert D, Noke M, Husson O. Logging On, Reaching Out, and Getting By. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View
  23. Ghanbari E, Yektatalab S, Mehrabi M. Effects of Psychoeducational Interventions Using Mobile Apps and Mobile-Based Online Group Discussions on Anxiety and Self-Esteem in Women With Breast Cancer: Randomized Controlled Trial. JMIR mHealth and uHealth 2021;9(5):e19262 View
  24. Gellerstedt M, Melin J, Johansson V, Angenete E. Are patients willing to take a more active role? Questionnaires to measure patients’ willingness to be empowered. Patient Education and Counseling 2022;105(3):741 View
  25. Lin J, Shorey S. Online peer support communities in the infertility journey: A systematic mixed-studies review. International Journal of Nursing Studies 2023;140:104454 View
  26. Gold K, Boggs M, Plegue M, Andalibi N. Online Support Groups for Perinatal Loss: A Pilot Feasibility Study for Women of Color. Cyberpsychology, Behavior, and Social Networking 2022;25(8):534 View
  27. Bender J, Babinski S, Wong G, Tricco A, Englesakis M, Cyr A, Potts H, Perski O, Esplen M, Young C, Wassersug R, Forster V, Papadakos J, Soobiah C, Fox C, Gothard-Huang A, Witteman H. Establishing best practices in cancer online support groups: protocol for a realist review. BMJ Open 2021;11(11):e053916 View
  28. Chi Y, Thaker K, He D, Hui V, Donovan H, Brusilovsky P, Lee Y. Knowledge Acquisition and Social Support in Online Health Communities: Analysis of an Online Ovarian Cancer Community. JMIR Cancer 2022;8(3):e39643 View
  29. Mallmann C, Domröse C, Schröder L, Engelhardt D, Bach F, Rueckel H, Abramian A, Kaiser C, Mustea A, Faridi A, Malter W, Mallmann P, Rudlowski C, Zivanovic O, Mallmann M. Digital Technical and Informal Resources of Breast Cancer Patients From 2012 to 2020: Questionnaire-Based Longitudinal Trend Study. JMIR Cancer 2021;7(4):e20964 View
  30. Schindler M, Domahidi E. The computational turn in online mental health research: A systematic review. New Media & Society 2023;25(10):2781 View
  31. Reid E, Mandryk R, Beres N, Klarkowski M, Frommel J. Feeling Good and In Control: In-game Tools to Support Targets of Toxicity. Proceedings of the ACM on Human-Computer Interaction 2022;6(CHI PLAY):1 View
  32. Ponce S, M Barry M, S Dizon D, S Katz M, Murphy M, Teplinsky E, Tinianov S, J Attai D, Markham M. Netiquette for Social Media Engagement for Oncology Professionals. Future Oncology 2022;18(9):1133 View
  33. van Eenbergen M, Vromans R, Tick L, Vreugdenhil G, Krahmer E, Mols F, van de Poll-Franse L. Comparing Survivors of Cancer in Population-Based Samples With Those in Online Cancer Communities: Cross-sectional Questionnaire Study. JMIR Cancer 2022;8(1):e19379 View
  34. Huang X, Fan J. Understand the Impact of Technology Feature in Online Health Communities: Why the Representation of Information Matters. International Journal of Human–Computer Interaction 2023;39(4):691 View
  35. Martina D, Angka R, Putranto R, Shatri H, Sudoyo A, van der Heide A, van der Rijt C, Rietjens J. Cancer Survivors' Experiences With and Preferences for Medical Information Disclosure and Advance Care Planning: An Online Survey Among Indonesian Cancer Support Groups. JCO Global Oncology 2023;(9) View
  36. Nguyen L, Ngwenyama O, Bandyopadhyay A, Nallaperuma K. Realising the potential of digital health communities: a study of the role of social factors in community engagement. European Journal of Information Systems 2023:1 View
  37. Di Martino G, della Valle C, Centorbi M, Buonsenso A, Fiorilli G, Calcagno G, Iuliano E, di Cagno A. Enhancing Behavioural Changes: A Narrative Review on the Effectiveness of a Multifactorial APP-Based Intervention Integrating Physical Activity. International Journal of Environmental Research and Public Health 2024;21(2):233 View
  38. Odeh Y, Al-Balas M. Towards Agility in Breast Cancer Treatment Principles as Adopted from Agile Software Engineering. Journal of Multidisciplinary Healthcare 2024;Volume 17:1315 View
  39. Bach F, Engelhardt D, Mallmann C, Tamir S, Schröder L, Domröse C, Mallmann M. Internet Access and Use by Patients with Gynecologic Malignancies: A Cross-Sectional Study. Cancers 2024;16(9):1677 View

Books/Policy Documents

  1. Döring N. Handbuch Online-Kommunikation. View
  2. Döring N. Handbuch Online-Kommunikation. View