Patient-Centered Innovations, Education and Technology for Cancer Care, Cancer Survivorship and Cancer Research
JMIR Cancer (JC) is a new peer-reviewed journal with a focus on education, innovation and technology in cancer care, cancer survivorship and cancer research, as well as in participatory and patient-centred approaches. A sister journal of the Journal of Medical Internet Research (JMIR), a leading eHealth journal (Impact Factor 2015: 4.532), the scope of JC is broader and includes non-Internet approaches to improve cancer care and cancer research.
We invite submission of original research, viewpoints, reviews, tutorials, case studies, and non-conventional articles (e.g. open patient education material and software resources that are not yet evaluated but free for others to use/implement).
In our "Patients' Corner", we invite patients and survivors to submit short essays and viewpoints on all aspects of cancer, but in particular suggestions on how to improve the health care system, and suggestions for new technologies, applications and approaches (no article processing fees).
JC is open access and all articles are published under a Creative Commons Attribution license. JC has been accepted for indexing in PubMed Central and Pubmed.
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Latest Submissions Open for Peer-Review:View All Open Peer Review Articles
Toward Timely Data for Cancer Research: Assessment and Re-engineering of Cancer Reporting Process.
Date Submitted: Feb 15, 2017
Open Peer Review Period: Feb 16, 2017 - Apr 13, 2017
Background: Cancer registries systematically collect cancer-related data to support cancer surveillance activities. However, cancer data is often unavailable for months to years after diagnosis, limit...
Background: Cancer registries systematically collect cancer-related data to support cancer surveillance activities. However, cancer data is often unavailable for months to years after diagnosis, limiting its utility. Objective: The goal of this study is to identify the barriers to rapid cancer reporting and identify ways to shorten the turnaround time. Methods: Certified cancer registrars reporting to the Indiana state cancer registry participated in a semi-structured interview. Registrars were asked to describe the reporting process, estimate the duration of each step, and identify any barriers that may impact the reporting speed. Qualitative data analysis was performed with the intent of generating recommendations for workflow redesign. The existing and redesigned workflow were simulated for comparison. Results: Barriers to rapid reporting included access to medical records from multiple facilities and the waiting period from diagnosis to treatment. The redesigned workflow focused on facilitating data sharing between registrars and applying a more efficient queuing technique while registrars await the delivery of treatment. The simulation results demonstrated that our recommendations to reduce the waiting period and share information could potentially improve the average reporting speed by 87 days. Conclusions: Knowing the time elapsing at each step within the reporting process helps in prioritizing the needs and estimating the impact of future interventions. Where some previous studies focused on automating some of the cancer reporting activities, we anticipate much shorter reporting by leveraging health information technologies to target this waiting period.
Comparison of internet and telephone interventions for weight loss among cancer survivors: A randomize control trial and feasibility study
Date Submitted: Jan 22, 2017
Open Peer Review Period: Jan 22, 2017 - Mar 19, 2017
Background: Weight loss interventions have been successfully delivered via several modalities, but recent research has focused on more disseminable and sustainable means such as telephone or internet-...
Background: Weight loss interventions have been successfully delivered via several modalities, but recent research has focused on more disseminable and sustainable means such as telephone or internet-based platforms. Objective: The aim of this study was to compare an internet delivered weight loss intervention to a comparable telephone delivered weight loss intervention. Methods: This randomized pilot study examined the effects of 6-month telephone- and internet-delivered Social Cognitive Theory-based weight-loss interventions among 37 cancer survivors. Measures of body composition, physical activity, diet, and physical performance were the outcomes of interest. Results: Participants in the telephone intervention (n = 13) showed greater decreases in waist circumference (-0.75cm for telephone vs. -0.09cm for internet, P = .03) than the internet condition (n = 24) and several other outcomes trended in the same direction. Measures of engagement (e.g., number of telephone sessions completed and number of logins) suggest differences between groups which may account for difference in outcomes. Conclusions: Cancer survivors in the telephone group evidenced better health outcomes than the internet group. Group differences may be due to higher engagement in the telephone group. Incorporating a telephone-based component into existing weight loss programs for cancer survivors may help enhance the reach of the intervention while minimizing costs. More research is needed on how to combine internet and telephone weight loss intervention components so as to maximize engagement and outcomes. Clinical Trial: Registered with www.clinicaltrials.gov with the following identifier NCT01311856
The impact of participation in online cancer communities on patient reported outcomes. A systematic review.
Date Submitted: Jan 12, 2017
Open Peer Review Period: Jan 18, 2017 - Mar 15, 2017
Background: The concept of ‘online community’ has developed in recent years as a result of improved technical possibilities. By participating, people gain insight into their illness and as members...
Background: The concept of ‘online community’ has developed in recent years as a result of improved technical possibilities. By participating, people gain insight into their illness and as members they usually search for others in comparable circumstances. The effect of participating in online communities on different outcomes of interest, has increasingly been investigated. Objective: The objective of this study was to systematically review all available literature concerning changes in patient reported outcomes (PROs) when cancer patients participate in online communities and the characteristics of patients who report positive effects. Methods: A computerized search of the literature via PubMed and Science Direct was performed. Last search was april 2016. Articles were included with the the following terms: cancer, patients, support group, health communities, internet. Twentyone articles were selected and were subjected to a 11-item quality checklist independently by two investigators. Results: The methodological quality of the selected studies varied; 12 were of high quality, 8 adequate and only 1 of low quality. Respondents were mostly women with breast cancer with a mean age of 50. Patients who are active online were mostly younger and higher educated than the non-users. The investigated PROs ranged from screening for general wellbeing (i.e. mood or health) through depression, anxiety, quality of life and post-traumatic growth, to cancer-related concerns. The effects found - i.e. PRO improvements - were overall marginal, in most cases insignificant and sometimes contradictory. Conclusions: Discussion: The big problem for this kind of studies is the lack of methodological instruments for reliable measuring. Conclusion: Some patients need online communities or online interaction, but do not expect to measure effects in PROs. If cancer survivors want to meet other survivors and share information or get support, online communities are a trustful possibility to make this happen.