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Patient-Centered Innovations, Education and Technology for Cancer Care, Cancer Survivorship and Cancer Research
JMIR Cancer (JC) is a Pubmed-indexed, peer-reviewed journal with a focus on education, innovation and technology in cancer care, cancer survivorship and cancer research, as well as in participatory and patient-centred approaches. A sister journal of the Journal of Medical Internet Research (JMIR), a leading eHealth journal (Impact Factor 2017: 4.671), the scope of JC is broader and includes non-Internet approaches to improve cancer care and cancer research.
We invite submission of original research, viewpoints, reviews, tutorials, case studies, and non-conventional articles (e.g. open patient education material and software resources that are not yet evaluated but free for others to use/implement).
In our "Patients' Corner", we invite patients and survivors to submit short essays and viewpoints on all aspects of cancer, but in particular suggestions on how to improve the health care system, and suggestions for new technologies, applications and approaches (no article processing fees).
JC is open access and all articles are published under a Creative Commons Attribution license. JC has been accepted for indexing in PubMed Central and Pubmed.
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Background: Most chemotherapy/radiotherapy is delivered in outpatient settings, thus interventions that support patient self-management of cancer treatment-related symptoms between clinic visits are n...
Background: Most chemotherapy/radiotherapy is delivered in outpatient settings, thus interventions that support patient self-management of cancer treatment-related symptoms between clinic visits are necessary. Objective: The purpose of this secondary analysis was to examine the impact of participant adherence to clinician recommendations and self-management for symptom/quality of life issues (SQIs) on symptom control, treatment satisfaction, and distress following use of the Electronic Symptom Assessment-Cancer (ESRA-C). Also, we explored baseline predictors of participant adherence to clinician recommendations and self-management for SQIs. Methods: Participants beginning a new chemotherapy/radiotherapy regimen used ESRA-C to report the top two SQIs three-six weeks post-baseline. The Symptom Distress Scale and Self-Management of SQIs Questionnaire were completed two weeks later. Results: Most participants (N=370) were adherent to clinician recommendations (74%), while fewer used self-management strategies for SQIs (49%). Participants who received clinician recommendations reported the highest treatment satisfaction (p<0.001), yet lowest distress was reported by participants who did not follow clinician recommendations (p=0.04) for top two SQIs. There were no differences in treatment satisfaction, symptom control, or distress between individuals who did/did-not self-report self-management for top two SQIs. Women reported greater self-management than men (p=0.03). Conclusions: Adherence to clinician recommendations for SQIs, but not self-management use, uniquely affected treatment satisfaction and distress. Technology may be used to facilitate patient-clinician communication and symptom self-assessment to improve patient adherence to clinician recommendations. Clinical Trial: ClinicalTrials.gov: NCT00852852
Background: As a result of improvements in cancer screening, treatment, and supportive care; nearly two-thirds of individuals diagnosed with colorectal cancer (CRC) are living 5 years after diagnosis....
Background: As a result of improvements in cancer screening, treatment, and supportive care; nearly two-thirds of individuals diagnosed with colorectal cancer (CRC) are living 5 years after diagnosis. An ever-increasing population of CRC survivors creates a need for effective survivorship care to help manage and mitigate the impact of CRC and its treatment. Personal health records (PHRs) and survivorship care plans (SCPs) provide a means of supporting the long-term care of cancer survivors. Currently, no literature exists on the use of these technologies specifically targeting colorectal cancer (CRC) survivors. Objective: The purpose of this study is to: 1) characterize the usefulness of a CRC PHR and survivorship care plan (SCP), and 2) describe the usability of these technologies among a population of CRC survivors. To our knowledge, this is the first study to assess a PHR and SCP specifically targeting CRC survivors. Methods: Twenty-two CRC cancer patients were recruited from surgery clinics of an academic medical center and VA hospital in Indianapolis and provided access to an online Colorectal Cancer Survivor’s Personal Health Record (CRCS-PHR). A mixed methods approach was taken to characterize the usefulness of a CRC-PHR and SCP and describe its usability among a population of CRC survivors. CRC patients were surveyed 6 months after being provided online access. Means and proportions were used to describe the usefulness and ease of using the CRC website. Open-ended questions were qualitatively coded using the constant comparative method. Results: Survivors perceived features related to their healthcare (i.e., Summary of My Cancer Treatment History, Reviewing my Follow-up Care Schedule, Self-entering Follow-up Tests I had Received, Description of Side Effects, and List of Community Resources) to be more useful than communication features (i.e., Creating and Setting up Relationships with Family Members or Caregivers, Communicating with my Doctor, Sending Mail Messages through the Cancer Website) as CRC survivors typically described utilizing traditional channels to communicate with their healthcare provider, i.e., via telephone or in-person. Participants had overall positive perceptions when it comes to ease of use and overall satisfaction. Major challenges experienced by participants included barriers logging into the system, inexperience and lack of computer literacy, as well as difficulty entering their patient information. Conclusions: These findings regarding the usability of a PHR for the management of CRC survivorship provides valuable insight on tailoring these technologies to patients’ experiences. These findings will inform future development of PHRs for purposes of both cancer and chronic disease management.
Background: Cancer is the generic name for a group of more than 200 diseases that have in common the disordered growth of cells that invade tissues and organs. The incidence of cancer is increasing wo...
Background: Cancer is the generic name for a group of more than 200 diseases that have in common the disordered growth of cells that invade tissues and organs. The incidence of cancer is increasing worldwide, and one of the causes is the longer life expectancy. Nevertheless, between 30% and 50% of cancer cases are preventable and early detection contributes to a better prognosis. So, health communication strategies are essential and in times of web 2,0, Facebook, the world's largest social network in 2017, can be a useful tool to disseminate relevant messages on health promotion, prevention and early detection of cancer. Objective: We aim to offer ways for optimizing health communication strategies in the area of cancer on Facebook and to do this; we investigated which aspects of these messages generate greater engagement. Methods: We used Quintly, a social media-monitoring tool that allows the monitoring of many social media at the same time, even if the user is not an administrator of such pages. After that, we did a manual content analysis of publications and engagement rate. Finally, we developed software to optimized analysis of Facebook’s posts. The tool aims to automate the analysis of any Facebook pages whose main theme is cancer. It is important to highlight that the number of pages that can be inserted for analysis is unlimited. Results: To verify what generates greater engagement in this area on Facebook, we studied 16 Brazilian pages whose main theme is cancer. The tool developed for this study allows metrics not publicly available as reach of the post (how many people viewed that post); post clicks (how many clicked to read the full text); post hides (how many people unveiled the page after reading the post, hiding the content of the post or denounced it as spam); likes; shares; comments (these last three are public information); engagement (number of clicks + likes + shares + comments); engagement rate (engagement divided by reach). The tool enables the creation of a ranking of posts, according to each of these metrics. The ranking can be created considering all the postings of the period or it can be filtered according to the category(s) to be analyzed. Conclusions: We saw that categories that generated greater engagement in Brazil are not those that have the highest percentage of publications.