Patient-Centered Innovations, Education and Technology for Cancer Care and Cancer Research
JMIR Cancer (JC) is a new peer-reviewed journal with a focus on education, innovation and technology in cancer care and cancer research, as well as in participatory and patient-centred approaches. A sister journal of the Journal of Medical Internet Research (JMIR), a leading eHealth journal (Impact Factor 2014: 3.4), the scope of JC is broader and includes non-Internet approaches to improve cancer care and cancer research.
We invite submission of original research, viewpoints, reviews, tutorials, case studies, and non-conventional articles (e.g. open patient education material and software resources that are not yet evaluated but free for others to use/implement).
In our "Patients' Corner", we invite patients and survivors to submit short essays and viewpoints on all aspects of cancer, but in particular suggestions on how to improve the health care system, and suggestions for new technologies, applications and approaches (no article processing fees).
Articles published in JC will be submitted to PubMed and Pubmed Central. JC is open access and all articles are published under a Creative Commons Attribution license.
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Latest Submissions Open for Peer-Review:View All Open Peer Review Articles
Mixed Method Evaluation of Adolescent and Young Adult Cancer Survivorship Educational Programming
Date Submitted: Mar 30, 2016
Open Peer Review Period: Apr 1, 2016 - May 27, 2016
Background: This mixed method evaluation considers the need for increased professional and patient education for Adolescent and Young Adult (AYA) cancer survivorship. Due to the high incidence of late...
Background: This mixed method evaluation considers the need for increased professional and patient education for Adolescent and Young Adult (AYA) cancer survivorship. Due to the high incidence of late effects of cancer treatment among AYA cancer survivors, knowledge sharing and communications are needed throughout the transition from cancer care into community care. AYA survivors are likely to need developmentally appropriate psychosocial care as well as extensive follow-on surveillance by physicians who are educated and aware of the likely chronic conditions and late effects that may occur in these patients. Digital technology including mobile apps, videos, and podcasts are important tools to support both AYA survivor and provider education. Objective: The objective of this mixed methods research was to evaluate the outcomes of the After Cancer Care Ends, Survivorship Starts for Adolescent and Young Adults (ACCESS AYA) programming. The intent of the ACCESS AYA program was to build health literacy around AYA survivorship issues and to stimulate improved communications between survivors and healthcare providers. The paper addresses the central research question of “How did the ACCESS AYA program increase health literacy, communications, and understanding among AYA survivors and providers?” Included in the evaluation were use of an iPhone app “AYA Healthy Survivorship” and a companion website with digital media developed for the project. Methods: This mixed methods evaluation included a brief quantitative survey of participants’ awareness and effectiveness of the ACCESS AYA project combined with in-depth qualitative interviews based on a general interview guide tailored to the different types of evaluation participants. The evaluation used the Atlas Ti™ qualitative database and software for coding and key word analyses. Inter-rater reliability analyses were assessed using Cohen’s Kappa analysis using Stata 12.1 software Results: Using a scale of 1 to 5, with 5 as high, there were 22 respondents who rated their level of awareness of the project with a mean 3.2 (CI 3.02:3.45). Participants rated effectiveness with a mean of 4 (CI 3.72:4.27). In the qualitative evaluation, key coding themes included survivor wellbeing, healthcare professional education, cancer advocates role and education, Seton hospital and community-based resources and the role of societal support. The inter-rater reliability scores (ranging from 1 to minus 1) for the First Cycle coding was .893, and .784 for the Second Cycle. The Cohen kappa scores were derived using Stata 12.1 statistical analysis software. Conclusions: This case study offers a substantive contribution to understanding the AYA survivor community and to the healthcare professionals and advocates who aid them in their efforts to a new “normal” life and wellbeing in their survivorship. The results of the evaluation highlight the need to continue to build both survivor and professional resources to address the unique impact of cancer on AYA cancer survivors.
Online social engagement by cancer patients: results of a clinic-based patient survey
Date Submitted: Mar 22, 2016
Open Peer Review Period: Mar 23, 2016 - May 18, 2016
Background: The Internet is commonly used as a source of health information, but little is know about the Internet practices specific to cancer patients. Objective: Our aim was to understand cancer pa...
Background: The Internet is commonly used as a source of health information, but little is know about the Internet practices specific to cancer patients. Objective: Our aim was to understand cancer patients’ use of the Internet as an informational resource and for social support. Methods: We conducted a survey of 1282 patients at a comprehensive cancer center to assess sociodemographic characteristics, disease status, and Internet access and online behaviors. Results: Of the cancer patients we surveyed, 83% had Internet access; of those with Internet access, 90% reported going online at least weekly, and 70% reported daily online activity. We grouped Internet users (n = 1061) by their level of online social engagement and found that about 30% had not sought out social connections online, 21% had read about experiences from other cancer patients, 38% had also written about their personal experiences, and 12% had participated in a formal online group for cancer patients. Increased online social engagement was associated with an increased perception that the Internet was useful for social support. Conclusions: Internet use among cancer patients is common, and most patients report that they find useful information about their cancer diagnosis online. Cancer patients who actively post or share content perceive more social support from the Internet than those who use the Internet solely as an informational resource or to read about other cancer patients’ experiences.