TY  - JOUR
AU  - Gupta, Vibhuti
AU  - Raj, Minakshi
AU  - Hoodin, Flora
AU  - Yahng, Lilian
AU  - Braun, Thomas
AU  - Choi, Sung Won
PY  - 2021
DA  - 2021/3/9
TI  - Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study
JO  - JMIR Cancer
SP  - e26509
VL  - 7
IS  - 1
KW  - hematopoietic stem cell transplantation
KW  - caregiver
KW  - mobile apps
KW  - questionnaire
KW  - survey
KW  - app
KW  - cancer
KW  - electronic health record
KW  - EHR
KW  - online portal
KW  - transplant
KW  - stem cell
KW  - management
AB  - Background: As family caregivers of patients undergoing hematopoietic cell transplantation have multifaceted caregiving responsibilities (such as medical, household, financial) of long duration, they also have multiple physical, social, psychological, and informational needs. Objective: This study explored the prevalence of electronic health record patient portal use by family caregivers for managing both their own and their hematopoietic cell transplantation care recipient’s health, as well as potential factors associated with portal use. Methods: An electronic caregiver health survey, first developed via cognitive interviewing methods of hematopoietic cell transplantation caregivers, was distributed nationally (in the United States) by patient advocacy organizations to family caregivers of hematopoietic cell transplantation patients. It was used to assess self-reported caregiver demographics, caregiving characteristics, depression and anxiety with the Patient Health Questionnaire–4, coping with the Brief COPE, and caregiver portal use to manage care recipient’s and their own health. Results: We found that 77% of respondents (720/937) accessed electronic health record patient portals for their care recipients, themselves, or both. Multivariate models indicated use of care recipient electronic health record portals by caregivers was more likely with young, White, married, low-income caregivers caring for a parent, residing with the care recipient, and experiencing more caregiver depression. Caregiver use of their own electronic health record portal was more likely with young, White, high-income caregivers caring for a parent and experiencing chronic medical conditions of their own. Partially due to multicollinearity, anxiety and coping did not contribute independently to this model. Conclusions: Findings from the survey could open avenues for future research into caregiver use of technology for informational support or intervention, including wearables and mobile health. International Registered Report Identifier (IRRID): RR2-10.2196/4918 
SN  - 2369-1999
UR  - https://cancer.jmir.org/2021/1/e26509
UR  - https://doi.org/10.2196/26509
UR  - http://www.ncbi.nlm.nih.gov/pubmed/33687332
DO  - 10.2196/26509
ID  - info:doi/10.2196/26509
ER  -