TY  - JOUR
AU  - Karsten, Maria M
AU  - Speiser, Dorothee
AU  - Hartmann, Claudia
AU  - Zeuschner, Nele
AU  - Lippold, Kai
AU  - Kiver, Verena
AU  - Gocke, Peter
AU  - Kirchberger, Valerie
AU  - Blohmer, Jens-Uwe
PY  - 2018
DA  - 2018/12/20
TI  - Web-Based Patient-Reported Outcomes Using the International Consortium for Health Outcome Measurement Dataset in a Major German University Hospital: Observational Study
JO  - JMIR Cancer
SP  - e11373
VL  - 4
IS  - 2
KW  - breast cancer
KW  - International Council Health Outcome Measurement
KW  - mobile phone
KW  - patient-reported outcomes
AB  - Background: Collecting patient-reported outcome (PRO) data systematically enables objective evaluation of treatment and its related outcomes. Using disease-specific questionnaires developed by the International Consortium for Health Outcome Measurement (ICHOM) allows for comparison between physicians, hospitals, and even different countries. Objective: This pilot project aimed to establish a digital system to measure PROs for new patients with breast cancer who attended the Charité Breast Center This approach should serve as a blueprint to further expand the PRO measurement to other disease entities and departments. Methods: In November 2016, we implemented a Web-based system to collect PRO data at Charité Breast Center using the ICHOM dataset. All new patients at the Breast Center were enrolled and answered a predefined set of questions using a tablet computer. Once they started their treatment at Charité, automated emails were sent to the patients at predefined treatment points. Those emails contained a Web-based link through which they could access and answer questionnaires. Results: By now, 541 patients have been enrolled and 2470 questionnaires initiated. Overall, 9.4% (51/541) of the patients were under the age of 40 years, 49.7% (269/541) between 40 and 60 years, 39.6% (214/541) between 60 and 80 years, and 1.3% (7/541) over the age of 80 years. The average return rate of questionnaires was 67.0%. When asked about the preference regarding paper versus Web-based questionnaires, 6.0% (8/134) of the patients between 50 and 60 years, 6.0% (9/150) between 60 and 70 years, and 12.7% (9/71) over the age of 70 years preferred paper versions. Conclusions: Measuring PRO in patients with breast cancer in an automated electronic version is possible across all age ranges while simultaneously achieving a high return rate. 
SN  - 2369-1999
UR  - http://cancer.jmir.org/2018/2/e11373/
UR  - https://doi.org/10.2196/11373
UR  - http://www.ncbi.nlm.nih.gov/pubmed/30573450
DO  - 10.2196/11373
ID  - info:doi/10.2196/11373
ER  -