@Article{info:doi/10.2196/11373,
author="Karsten, Maria M
and Speiser, Dorothee
and Hartmann, Claudia
and Zeuschner, Nele
and Lippold, Kai
and Kiver, Verena
and Gocke, Peter
and Kirchberger, Valerie
and Blohmer, Jens-Uwe",
title="Web-Based Patient-Reported Outcomes Using the International Consortium for Health Outcome Measurement Dataset in a Major German University Hospital: Observational Study",
journal="JMIR Cancer",
year="2018",
month="Dec",
day="20",
volume="4",
number="2",
pages="e11373",
keywords="breast cancer; International Council Health Outcome Measurement; mobile phone; patient-reported outcomes",
abstract="Background: Collecting patient-reported outcome (PRO) data systematically enables objective evaluation of treatment and its related outcomes. Using disease-specific questionnaires developed by the International Consortium for Health Outcome Measurement (ICHOM) allows for comparison between physicians, hospitals, and even different countries. Objective: This pilot project aimed to establish a digital system to measure PROs for new patients with breast cancer who attended the Charit{\'e} Breast Center This approach should serve as a blueprint to further expand the PRO measurement to other disease entities and departments. Methods: In November 2016, we implemented a Web-based system to collect PRO data at Charit{\'e} Breast Center using the ICHOM dataset. All new patients at the Breast Center were enrolled and answered a predefined set of questions using a tablet computer. Once they started their treatment at Charit{\'e}, automated emails were sent to the patients at predefined treatment points. Those emails contained a Web-based link through which they could access and answer questionnaires. Results: By now, 541 patients have been enrolled and 2470 questionnaires initiated. Overall, 9.4{\%} (51/541) of the patients were under the age of 40 years, 49.7{\%} (269/541) between 40 and 60 years, 39.6{\%} (214/541) between 60 and 80 years, and 1.3{\%} (7/541) over the age of 80 years. The average return rate of questionnaires was 67.0{\%}. When asked about the preference regarding paper versus Web-based questionnaires, 6.0{\%} (8/134) of the patients between 50 and 60 years, 6.0{\%} (9/150) between 60 and 70 years, and 12.7{\%} (9/71) over the age of 70 years preferred paper versions. Conclusions: Measuring PRO in patients with breast cancer in an automated electronic version is possible across all age ranges while simultaneously achieving a high return rate. ",
issn="2369-1999",
doi="10.2196/11373",
url="http://cancer.jmir.org/2018/2/e11373/",
url="https://doi.org/10.2196/11373",
url="http://www.ncbi.nlm.nih.gov/pubmed/30573450"
}